Sunday, July 10, 2011

A siblings perspective

Hello & welcome to our family blog! This is a blog my mom & I will share to blog about our life with Sarah, who just happens to be blessed with Down Syndrome. Life with her is not always easy but with Gods help we have made it & will continue to do so! I will start by writing about my perspective as a sibling to someone with special needs. I wrote some of this in our local down syndrome groups book but its been a few years so heres more.
Having Sarah as my sister has been the greatest blessing in my life, even if she has that extra special chromosome. It is not always easy being a sibling, somedays I even wish she was not the way or personality she is but that can never change my love for her. The biggest struggle that we seem to face with her is that she has social phobia which is not the normal for people with Down Syndrome as most are pretty outgoing & loveable. Through the years I have gone to a camp for kids/adults with special needs & their siblings. The way its setup the siblings have sorta a seperate program to hangout with other sibs that they can relate to & discuss life with a special needs sibling. To me this has been my greatest support, as its been the only place I have gotten to fully discuss what I feel & meeting others that are going through the same thing. I grewup with no friends in the same town to share that same bond of a sibling with special needs & I am so glad Camp Barnabas provided me with that friendship and support to know I am not alone in the world.
I think thats all I will write for now!

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